Rare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)

Rare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)
  • http://www.raregenomics.org, www.rareshare.org
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Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, [email protected] (Music credit: www.bensound.com)

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LGLL Podcast Series-02/13/15

February 13, 2015

Featuring Dr Thomas Loughran (UVA), Dr Thierry Lamy (Rennes University, France)  and Dr Jimmy Lin (RGI/RareShare)

Listen   47:11

Antisynthetase Syndrome Podcast Series-02/24/2015

February 25, 2015

Featuring Dr Fredrick Miller (NIEHS, NIH), Dr Lisa Christopher-Stine (John Hopkins School of Medicine) and Dr Jimmy Lin (RGI/RareShare)

Listen   58:21

Featuring Dr Misha Angrist (Duke University), Dr Lyon Gholson (Cold Spring Harbor Laboratory), Dr Susan Perelman (David Geffen School of Medicine at UCLA)  & Dr Jimmy Lin (RGI/RareShare) in association with Ben's Friends

Listen   57:33

Ataxia Podcast Series-II (Bonus Segment)-10/11/2012

April 13, 2015

Featuring Dr Susan Perelman (David Geffen School of Medicine at UCLA) & Dr Jimmy Lin (RGI/RareShare) in association with Ben's Friends

Listen   21:56

Featuring Dr Benjamin Greenberg (UT Southwestern Medical Center), Dr Allen Desena (University of Texas Southwestern in Dallas), Dr Cathleen Lutz ( The Jackson Laboratory) & Dr Jimmy Lin (RGI/RareShare) in association with The Transverse Myelitis Association (TMA)

 

Listen   48:05

Featuring for C. elegans segment - Dr Andy Golden (NIDKD, NIH) & Dr Michael Stern (University of Central Florida) & for Trigeminal Neuralgia (TN) segment - Dr William P Cheshire (Mayo Clinic, Florida) & Dr Richard A. Lawhern (Living with TN) along with hosting Dr Jimmy Lin (RGI/RareShare) in association with Ben's Friends

Listen   57:29

Syndrome Without A Name, Ask the Expert Podcast Series-06/28/2012

April 17, 2015

Featuring Dr Jimmy Lin (RGI), Dr Marisa Dolled-Filhart (RGI) and Dr Naira Rezende (RGI) in association with Amy Clugston, SWAN USA

Listen   60:39

Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series-06/02/2015

June 03, 2015

Featuring Dr Weston Miller (Univertsity of Minnesota), Dr Jay R Shapiro (Kennedy Kreiger Institute, John Hopkins University), Ms Ann Moser  (Kennedy Kreiger Institute, John Hopkins University) and Dr Jimmy Lin (RGI) 

Listen   73:07

Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015)

August 13, 2015

Featuring Dr Scott Hickey (Nationwide Childrens Hospital, Columbus, OH), Dr Eugene Strehle (North Tyneside General Hospital & Newcastle University, North Shields, UK), Ms Prisca Middlemiss  (Unique, The Rare Chromo Disorder Group, Oxted, Surrey, UK) and Dr Jimmy Lin (RGI)

Listen   56:42

LGLL Podcast Session II (11/24/2015)

November 24, 2015

Featuring Dr Thomas Loughran (UVA, Virginia), Dr Lubomir Sokol (Moffitt Cancer Center, Florida)  and Dr Jimmy Lin (RG/RareShare)

Listen   60:47


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