RareShare/Rare Genomics Institute Podcast Channel, Ask the Expert & Patient Navigation (deepask1)


Member Since: February 13, 2015 15:33

18 Files

Name Date
folder LGLL Podcast February 13, 2015 15:37
folder Antisynthetase Syndrome February 25, 2015 08:21
music LGLL Podcast Series-02/13/15 February 13, 2015 15:44
music Mendelian Rare Diseases and Technological Advances in Sequencing, Ataxia Podcast Series-I-10/8/2012 April 13, 2015 17:07
music Ataxia Podcast Series-II (Bonus Segment)-10/11/2012 April 13, 2015 17:16
music Mice as Research Models in Rare Neuro-immunologic Diseases (Transverse Myelitis, Neuromyelitis Optica, Acute Disseminated Encephalomyelitis and Optic Neuritis)-8/13/2013 April 13, 2015 17:39
music C.elegans (Nematode worms) as a Research Model in Rare Diseases & Trigeminal Neuralgia (TN) Podcast Series-12/12/2012 April 13, 2015 18:17
music Syndrome Without A Name, Ask the Expert Podcast Series-06/28/2012 April 17, 2015 12:29
music Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series-06/02/2015 June 03, 2015 23:10
music Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015) August 13, 2015 20:32
music LGLL Podcast Session II (11/24/2015) November 24, 2015 21:18
music LGLL Podcast Series III (3/25/2016) March 28, 2016 21:26
music Crigler Najjar Syndrome Ask The Experts Podcast Series (05/25/2016) May 29, 2016 16:37
music Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation) September 11, 2016 23:44
music LGLL Ask The Experts Podcast Session IV November 18, 2016 18:12
music Adrenomyeloneuropathy (AMN)/Adrenoleukodystrophy (ALD) Podcast Series, Session II (06/14/2017) June 15, 2017 17:14
music Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017 November 20, 2017 23:00
music The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation) March 06, 2018 12:25
music Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation) May 14, 2018 20:09

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